Lipedema não é um caso encerrado
2021-02-22
A LIO Lipedema Italia – Associazione Nazionale Pazienti affetti da Lipedema dinamizou um webinar à volta do lipedema e das guidelines existentes focando-se no último consensus (2020).
Promover a discussão foi o objectivo, tanto mais que o documento publicado em 2020 não é alvo de uma consenso por parte de vários parceiros
Ao debate, completamente aberto, estiveram presentes as Associações de Doentes e a classe médica e cientifica.
Este foi o primeiro webniar que teve lugar e decerto nos seguintes outras Associações, Médicos e Cientistas vão querer estar presentes.
As Associções presentes:
- Adalipe – Asociación de Afectadas de Lipedema de España. Maria Pacheco, (Secretary), Adalipe
- AMLF Association Maladie du Lipœdème France. Elodie Sauvageot (Chair), Aines Loghmari (Webmaster and facilitator), Rhislaine Vannson (Research and documentation collaborator)
- andLINFA – Associação Nacional de Doentes Linfáticos (Portugal). Manuela Lourenço Marques, (Chair), andLINFA
- DALYFO – Dansk Lymfødem Forening, Lene Tofteng Hansen (Board member, responsible for supporting patients with lipedema)
- FDRS, Fat Disorders Resource Society, Cheyenne Brinson (President), FDRS
- LIO Lipedema Italia onlus (Italy), Valeria Giordano (Chair) and Alessandra Lisini (Board member), LIO
- Lipedema Foundation, Felicitie Daftuar (Founder) and Guy Eakin (Chief Scientific Officer) of Lipedema Foundation
- Lipedema Simplified, Catherine Seo, (Chair), Lipedema Simplified, USA
- Lipoedema Australia, Nola Young (President), Lisa Pyle (Secretary), Lipoedema Australia
- Lipoedema UK, Sharie Fetzer (Chair) and Kate Forster (Secretary), Lipoedema UK
- Lotta al Linfedema ODV, Italy
- LymphoSuisse (Switzerland), Danaé Panchaud, (Member and author of lipoedeme.ch), LymphoSuisse
- NLNet, Nederlands Netwerk voor Lymfoedeem & Lipoedeem, Drs. Wouter Hoelen, (responsible for research) NLNet, Marije Strobos (lipedema experience expert) NLNet
- Resilia – Linfa per la Vita. Maria Antonietta Salmè, (Chair), Resilia (Italy)
- SÖF Svenska Ödemförbundet (Sweden). Margareta Haag (Chair)
- Talk Lipoedema. Isobel MacEwan (Chair), Talk Lipoedema
Classe médica e cientifica:
- Karen L. Herbst, MD, PhD
- Department of Medicine, University of Arizona; Karen Herbst, MD, PC, Los Angeles, CA, USA
- Sandro Michelini
- Department of Vascular Rehabilitation and Oedema Management, San Giuseppe Hospital, NHS Marino (Rome), Italy, Past President ISL (International Society of Lymphology), Past President ESL (European Society of Lymphology), President of ITALF (Italian Lymphedema Framework)
- Q&A Discussants:
- Agostino Bruno,
- Department of Plastic and Reconstructive Surgery. Sant’Eugenio Hospital, Rome, Italy
- Marina Cestari
- Department of Angiology NHS-Terni, Italy. Founder of Pianeta Linfedema and responsible for the ESL European Society of Lymphology Web Site
- Isabel Forner-Cordero, PhD
- Physical Medicine and Rehabilitation Service, University Hospital La Fe, Valencia, Spain
- Paula M C Donahue, DPT, CLT-LANA
- Department of Physical Medicine and Rehabilitation, Vanderbilt University Medical Center, Nashville, TN, USA
- Med. Yvonne Frambach
- Hanse-Klinik, Lübeck, Germany
- Emily Iker, MD
- Lymphedema Center, Santa Monica, CA, USA
- Linda Anne Kahn, HHP, CMT, CLT-LANA, CHNC
- Lymphatic Therapy Services, San Diego, CA, USA
- Leslyn Keith, OTD, CLT-LANA
- The Lipedema Project, Boston, MA, USA
- FT Sara Mantovani, FT
- StudioErre physical therapy center, Brescia, Italy
- Lucia Mazzolai, PhD
- Angiology Division Lausanne University Hospital, Lausanne, Switzerland. Chair of Lymphosuisse Association
- Lindy McHutchison, MD
- The Lipedema Center, Carolina Vein Center, Durham, NC, USA
- Professor Christine Moffatt, CBE FRCN PhD MA RGN DN
- Nottingham Trent University, UK. Chair International Lymphoedema Framework
- Alberto Onorato, PhD
- Linfamed reahabilitation center, Udine, Italy, President of Associazione Lotta al Linfedema odv, Italy
- Jaime Schwartz, MD, FACS
- Total Lipedema Care, Los Angeles, CA, USA
- Molly Sleigh, OTR/L, CLT-LANA
- Lighthouse Lymphedema Network, Atlanta, GA, USA
- Dr. Med. Wilfried Schmeller
- Hanse-Klinik, Lübeck, Germany
- Professor Dr Med. Uwe Wollina
- Head of Department of Dermatology and Allergology & Certified Skin Cancer Center, Städtisches Klinikum Dresden, Germany
- Thomas Wright MD
- Lipedema Surgical Solutions, O’Fallon, MS, USA